Arthur's Big Blue Night is Australia's Biggest and Bluest Night in support of the 1 in 1000 Children in Australia living with Arthritis.
It's a lot of work, no wait. It's a MASSIVE amount of work that goes into create this Big Blue Night for children living with Juvenile Arthritis.
Just like Kids Arthritis Australia everyone involved is a volunteer and the event is no different.
Volunteers or as we call them, KAVolunteers come from all over the country to volunteer their time for Kids Arthritis Australia.
This year is very special as it is our second annual event and we are having LIVE local acts at the event! Local harpist and guitarists will join us this Saturday night. The biggest LIVE act is Katie, KAWarrior who battles Juvenile Arthritis will once again bring joy to all who attend through her piano.
The yummiest part of the evening is all the delicious local produce that is served to all that attend. These delicious sausage rolls, cakes, sandwiches, everything you could ever image. Are made by local KAVolunteers for the guests to enjoy. You never go home hungry from a Kids Arthritis event!
Inspirational Speakers will grace the stage sharing their journeys battling Juvenile Arthritis and what it's really like living each day in pain.
There's an auction, live music, fresh, local home baked food, inspiration and the Auctioning of the famous Kids Arthritis Quilt!
It's a night out for the whole family and it's happening THIS SATURDAY from 7pm!
If you can't attend but still want to make a donation, please head to the Kids Arthritis website.
I look forward to seeing you all on Saturday!
I have always wanted to create change and awareness about Juvenile Arthritis. My mother and I spent many years of my life trying to create it but, it just never happened.
My Uncle retired a few years ago from the job he spent 42 years doing. Each day he'd travel 3 hour trip to get to and from work. Why did he do it? Passion. He enjoyed his first and only job he did since finishing school all those years ago.
We all have passions.
It could be creating delightful cakes for family, like my friend Tiffany.
You could love spending time modifying and creating your dream car, like my friend Brett does.
Maybe you love the bus trip into work, the people who surround you in the space and what difference you make through the role you do, like so many of us do.
I spent many years searching for a way to do my passion.
When the suggestion of creating Australia's First organisation was talked about, it was always put down as 'too hard' by those who were supposed to be helping me.
While completing high school I tried to get ahead of the others and study Health and Fitness at an adult campus, while completing schooling. Once I finished school I was accepted to work at my local gym. From there I got another job at two local childcare centres, as I thought these were my two passions. I make it sound so easy to get these roles, but it wasn't. To learn more, read my other post about Disability Discrimination.
Turns out I was wrong and when it was time to lay off workers, I was the first to go.
After this I started my own Health and Fitness Business which I ran for a little over two years, before running a charity and business became too much living with Juvenile Arthritis, which one of them had to go.
From that moment I was able to focus more on supporting Children living with Arthritis. I don't get paid for any of the work I do. If I speak at community groups, events, conferences, etc and receive a donation in return. It goes straight to the Australian First Support Groups that Kids Arthritis Australia run.
Each week I spend just over 30 hours changing the way the world views Arthritis, but why would I do this if there's no money value in return?
Passion.
Supporting the 1 in 1000 Children in Australia living with Juvenile Arthritis just like myself, is my Passion.
These children need support, their families, careers and siblings need support. They need help and awareness of this common yet hidden condition they battle everyday and who better to do this than someone who's battled it for her whole life.
What's your Passion? Let me know on Facebook.
www.kidsarthritis.org
