Showing posts with label volunteer. Show all posts
Showing posts with label volunteer. Show all posts

Monday, 3 July 2017

Life with One Eye

At the beginning of 2017 I wrote a post sharing, ‘The Day I Lost My Sight’. I thank those for their questions and words of support, but there was one question asked by many readers: 

“What’s it like living with vision in one eye?”

This is a common question I get asked, as it’s a problem that many may never have to experience.

In the beginning simple daily activities; reaching for a glass of water or shaking someone’s hand were a huge problem. This was due to the depth of field issue. My brain had to re wire itself in how it saw the world and how far away objects were. 

Time went by when driving at night become an issue. I hear from older adults that they give up driving due to feeling unsafe on the road or those car headlights are too bright. I was 20 years old and had to give this up, something I’d worked hard to gain that gave me independence, but had to give up due to something I had no control over, Juvenile Arthritis.


Another impact was that the world I see is darker than others as there’s only light entering one eye, rather than two. This means when in rooms with dimmed lighting it’s disorientating and I can become light headed and everything that’s part of that feeling.


By far the biggest impact has been the risk of the condition that caused this in the first place, Uveitis affecting my left eye. If and when this happens, no one knows and what effect it will have on my life we will see at the time. But I never let any of this hold me back from achieving my life mission: “To change the way the world views Arthritis.”

Monday, 11 July 2016

The Beginning of a Changed World.

This photo of Tahila cuddling Arthur the Arthritis Bear taken by the wonderful Kids Arthritis Media Man, Rhys. Reminds me of how that one moment that someone actually listened to me about my Juvenile Arthritis struggles, is now helping so many others just like me. 

I had to create a movie looking back at how far not only Kids Arthritis had come in the past two years, but myself. From humble beginnings getting three supporters and myself around a table to discuss a way to create awareness. To a National Launch that attached not only local Identities, but community members from all over Australia together in one place. Not to mention a whole radio show on Hills Radio devoted to the world changing evening, with interviews from children, parents and community members all sharing in the cause.

We have now been named a fastest growing non for profit in our area. Offering more programs and holding more events in our first year of official operation than most other organisation of our age. This gives me great pride, as each day I awake no matter how much pain I'm in or fatigued I may be, to change the way the world views Arthritis. 

To some this is a huge fate, but to me, it's my life and will always be my life. The children I come in contact everyday all have one thing in common besides living with Juvenile Arthritis, that is; SUPPORT. 

Kids Arthritis is Australia's First organisation solely dedicated to supporting Children living with Arthritis. I know it's hard when you've lived an isolated life where you think no one understands about your child's disease, that someone or even a organisation out there really cares this much.

Well we do! We care about how your child feels, what's going on in their lives now and in the future. Not only that but, you as parents, grandparents and friends. What it feels like for you. Kids Arthritis Australia is here to help. We have parents, friends, children and professionals who live with Juvenile Arthritis everyday for you to talk to. We're all volunteers and are in it for you not for the money. We want to help and support children, their families and carers living with Juvenile Arthritis in any way possible.

If I read this ten or fifteen years ago, I would jump on the opportunity for a healthier and better life surrounded by others just like me, living just like me. If you're reading this now and know a child living with Juvenile Arthritis, please don't be ashamed to seek support from myself at Kids Arthritis Australia as we are here for you everyday. 

Monday, 1 February 2016

Why does my Arthritis hurt in different weather?

I have recently stumbled across my new favourite science channel SciShow. 


Now before we go any further I do enjoy watching the occasional fluffy bunny eating a carrot video like the one below. www.youtube.com/watch?v=uDT4bHBtK4g

But if I'm really going to spend time trolling through YouTube I would rather learn something, and that's how I stumbled across these guys. Their videos are not only informative but the questions are asked by real people from all over the world. 

One of their videos was of most interest to me as they were speaking about a problem I live with daily. The changing weather and my Arthritis. You can watch it here: www.youtube.com/watch?v=86L4oRORREY

For years now I've known that the changing weather from hot to cold has played a part in why some days I can't move because of pain and others I'm free as a bird (sort of). I would have to be admitted to hospital during these cooler months for operations to remove Arthritis swelling and other procedures.
The video explains that our body genes can change expression or in other words turn on and off depending on the season. 

Researches in the UK and Germany studied over 16,000 peoples genomes, using blood and fat samples collected at different times throughout the year. Now if you didn't know there are different fats, proteins and other gooey stuff in our bodies that change throughout the year. This meant that 5,000 genes out of 23,000 genes were more active during cooler weather.

To put this all into practice they tried the study on Mice by using their ARNTL genomes, which suppresses inflammation. It turned out that during the winter months it was not suppressed, which meant that there was more active Arthritis during that time. 

If you want to know more about why your Arthritis may be different during different seasons please speak with your local doctor or Rheumy.

Needless to say I learnt a lot about my own disease in this video and it's great to know that someone out there is trying to find a cure for Arthritis.

Until next week,

Keep smiling as you never know whos day you'll brighten.


Monday, 18 January 2016

Needle Problems

If I had a dollar for every time I needed a needle jabbed somewhere into my skin. I would be living somewhere on a private island researching a cure for Arthritis.

No seriously, it really is that much.

Now I am not talking about just little tiny blood tests, I am talking about medication injections, infusions, transfusions, drips and the list goes on.

I have had so many jabs by a needle that now even for a simple blood test check up an anesthetist is required to get the needle in to get enough blood. I am also not talking about a normal needle that anyone over the age of 5 years old has, I'm talking about a tiny butterfly needle.

Here's a photo of one if you don't know.


It is quite a small needle that takes much longer than using a "adult needle" that is quite thick and much longer.

This is a sad thing to have happened to me. I'm only 22 years old and already am having vein problems. The nurses say I am a 22 year old with the veins of a 80 year old (Sarcastic Yay). The way I have been told to fix this is not to have any needles jabbed into me. 

Well this is impossible.

Another thing you may not know about me, is that I have never looked at a needle in my skin.

NEVER!

but that is a story for my next post.

Until next time,

Keep smiling as you never know who's day you'll brighten.

Wednesday, 23 December 2015

It's the most wonderful time of the year!

"It's the most wonderful time of the year."

I think the above phrase should be changed to.

"It's the most painful and inflaming time of the year."

Why you ask?

In Australia Christmas Time is during summer. Our Summers reach a low of 28 degrees to a high of 42 degrees and higher. This sudden change in temperature every day activates my Arthritis and sends my inflammation sky high!

When I was a child and for 13 years in a row, this is the time of year I was admitted to hospital to have inflammation around my joints removed or a surgery to do with medication abuse and side effects. Most of the time it was for both and it would take me out of school for 4 to 5 days straight.

Now missing school is every child's wish, but for me. It never was. 
My wish was to be able to attend school so I could learn new and exciting things, but to also have the social aspect with my friends. 

As adults if we don't keep in contact with a person, we essentially loose them as a friend. This is what happens to a child with Arthritis. Due to pain, inflammation and stiffness. The child must go see a doctor which then leads to time away from school, which then leads to loss of social contact. That finally leads to a whole lot of problems which a child doesn't need in their lives.

These children just like me suffer every day in pain and stiffness which means they may find it hard to do every day things. This was the case for me around this time every year.

"What do you have swollen this year Sarah?" is what my friends always ask me.

Well this year it's quite exciting (please note my amazing sarcasm skills) my left elbow is quite warm, is much larger than my right one and it hurts so much that I just don't know how I managed to type this blog post. 

Except we all know how I managed to write this post. It is because no matter what time of the year it is, or how much pain I am in. I live for supporting children just like me living with Arthritis. As I always say; there's no point giving up because what I suffered with as a child would all be a waste.

Until next time,

Keep smiling as you never know who's day you'll brighten. 

Wednesday, 16 December 2015

There's more to Sarah

As you have read in other posts (if you haven't read any others, you now have to) I do more than just Kids Arthritis.

I come from a community minded family. For as long as I can remember Monday nights dad has always attended Country Fire Service volunteer meetings. Since I turned 17 years old and my Arthritis became easier to manage my mum has been volunteering with the elderly through community activities on a full time bases. My brother has always been apart of Country Fire Service Volunteer Cadets, so that one day he can be a volunteer like dad as well. 

Then there's me.

From the age of 12 years old I have volunteered with the local Kids Club. I first started as the dish washer then moved to not only becoming apart of the team but organising and running the games. These days I organise and present the story and help with craft creation all still part of the same team. This is something I have always enjoy as I love helping children grow and develop. I have done my days of childcare work and realised it just wasn't for me.

Life Bursts on Hills Radio is another passion and hobby of mine. When people ask what I do in my off time they are shocked that one of my hobbies is being on the radio. As I have mentioned before in another blog post. I find radio not only fun but rewarding, as I get to meet new people every week and hear a Burst of their Lives with the help of Matt.

I have fun every Monday transforming people's lives through health and fitness. If you have watched any of the Sarah Talks videos you will know all about this. 
When I was younger the physiotherapist would give me a new exercise sheet every monthly visit and ask the same question. 

"Will you do your exercises this month Sarah?"

My answer would always be.

"Yes, of course"

Why did I lie? Why couldn't I just tell her how I really felt?

Growing up in a world where people don't know that Children live with Arthritis is hard, so it was hard for me to speak up and tell her the reason why I wouldn't do my exercises. (Now you have to check out my videos to find the answer: www.youtube.com/pranks4kidsarthritis)

So from being a child who didn't enjoy exercise to someone who one day said;
"Mum can you please take me to become a Personal Trainer?"
Was a huge shock to everyone around me who know how bad my Arthritis really was.

Now I inspire my wonderful clients each week with the battles I went through just to be here, and for all of you who are now asking. Yes I do enjoy exercise, I now do it every morning just to unstiffen my joints for the rest of the day.

There is more to me than just 'That Girl with Arthritis' rather I am a women of all trades who loves just being helpful in my community.

Until next week,

Keep Smiling as you never know who's day you'll brighten.



























Wednesday, 9 December 2015

This week Sarah is dairy intolerant.

This weeks post gets its name from Rhys from RawCutAU. This guy does so much for Kids living with Arthritis I swear he gets sick of my voice because of all the editing he does for the videos.

For the last couple of months when I have had my late morning dose of caffeine, all thanks to the reoccurring Lupus that just doesn't want to give me a break. I have felt quite sick afterwards and sometimes it wouldn't stay down, rather come back up again.

When you have Arthritis doctors sometimes can not give you an answer. You can spend hours having tests done to get back the results you knew you were going to get. After a life of wasting hours doing this, I now sometimes try to find out the matter before going to see a doctor.

On this occasion I knew that milk upset me but wasn't sure whether all dairy would have the same effect, so when my friends went out for pizza. I joined them to see how the dairy in pizza would effect me. Same reaction as the milk but this time it actually stayed inside me.
I tried different dairy and came to the conclusion that the Arthritis has changed my immune system once again and now Soy Milk is my best friend. 

As I do at Kids Arthritis we are open and share with one another what is going on in our lives. 
It was a Wednesday and it was filming day for #Pranks4KidsArthritis and Rhys was pouring coffees as he usually does. Before it came to mine I had to interrupt him and pour soy milk into mine rather than dairy milk. I explained to him the story I have just told you and this is how the title for this weeks post came about. 

Having Arthritis doesn't just effect your joints but sometimes your internal organs as well. All Arthritis medications are designed to alter the child's body to help it keep their disease under control. If you ever do experience any unusual feelings even if you don't have Arthritis, please speak with a doctor. I have had Arthritis long enough that if something isn't right, I will try and fix it within reason and then head to the doctor, because if I didn't I should live in a hospital.

So to Rhys who not only volunteers his time support Children living with Arthritis but to a dear friend who is a listening ear and a laughing companion, thank you for all that you do. You really are someone special.

Until next time,

Keep smiling as you never know who's day you'll brighten. 





Tuesday, 17 November 2015

What is Lupus?

The year was 2013 and it was my usual Rheumy, or Arthritis doctor to those who don't know the Arthritis lingo. It starts with a blood test that usually takes more than half an hour. This is because my veins are quite thin due to the thousands of times they have been broken because of infusions, operations and blood tests.
From here it's the wait to see the Rheumy and into her office I go.

Now I am referring to this particular appointment as this was when I was told I had an extra strand in my body that is known as Lupus in my case.
Up to this point I had experienced times of getting lost while out driving, feeling more tired than usual, random vomiting throughout the day and a rash all over my body that was made worse through sunlight. Now if you have any of these symptoms please do not assume that it's Lupus, please go see you local doctor.

This moment that the Rheumy informed me of yet another autoimmune disease was attacking my body, I did feel just a bit frustrated with the result but at the same time there was nothing I could do to fix it.

Now for those who don't know what Lupus is, I found an easy explanation on MedicalNewsToday.

Lupus is a chronic autoimmune disease in which the immune system produces antibodies to cells within the body leading to widespread inflammation and tissue damage.
Any part of the body can be affected by lupus as it has an array of clinical manifestations affecting the skin, joints, brain, lungs, kidneys, blood vessels and other internal organs.

When I am diagnosed with a new condition, which happens quite a lot these days. I ask as many questions as possible to the Rheumy and she refers me onto the internet for more information. Some of my favourite facts (sarcasm) about Lupus that I found online are:

- Lupus is an autoimmune disease that can be mild or life threatening.
- More than 90% of Lupus suffers are Women.
- Staying out of the sun is perhaps the most important thing to do.

What does make me furious is that my Lupus may have been prevented as it's believed to be medical induced. Which means the medication I may have once taken or take now have caused Lupus. 

Even though it's another disease I now have to live with everyday, I do have a life and this life may be short for me, but I am determined to live everyday to the full and to live it supporting other children like me with Arthritis.

Until next time.

Keep smiling as you never know who's day you'll brighten.


Thursday, 12 November 2015

Thanks for an Amazing 21st year!

I don't know about anyone else but on my birthday I not only enjoy celebrating the past year of my life, but thinking about all that I have achieved.

This year I was 21 years old and looking back, Wow I have achieved some pretty amazing things for someone of my age with my type of disability. 

Not only have I started an organisation that is dedicated to supporting Children living with Arthritis. 

I have also been successful in not needing an infusion every 4 weeks and a tablet every morning to stay alive, rather just the little yellow tablet.

Come into contact with some amazing KAWarriors who suffer with Arthritis everyday and who have been supported by Kids Arthritis (Yes you, Emily and Kristy!)

Organised and hosted my very own event, Big Blue Night in support of Kids Arthritis.

Began Life Bursts, a radio show every Wednesday from 4pm to 6pm on Hills Radio, with my wonderful other host Matt and had fun learning everything radio again from Crash!

Created hundreds upon hundreds on Facebook, Twitter and Instagram posts all in support of Kids Arthritis.

Raised over $3,000 in support of Children with Arthritis.

Taken way too many selfies on my SnapChat, some even ended up on instagram; www.instagram.com/kidsarthritis

Thought Bitstrips were cool and annoyed all my friends with them.

Consumed too many cups of lemon tea while eating fresh fruit with oats, I say fruit with oats as there's always more fruits than oats.

Celebrated birthdays and deaths of love ones this year (this includes my pet chickens and ducks).

Had fun #Pranking4KidsArthritis with Rhys from RawCut and spending too much time infront of the camera telling lame jokes. www.youtube.com/pranks4kidsarthritis

Helped so many amazing people achieve their health and fitness goals through my Health and lifestyle group and personal training not only in my home town but Adelaide too!

www.facebook.com/sarahfitnessechunga


and the most important one.

Learnt that others do really care about my story, my pains and how I want to support Children with Arthritis. Before this year it was so hard but I thank everyone who has been apart of my life this year because you have helped shape me and made me believe that I really can change the world through supporting other children just like me with Arthritis.

Until next time.

Keep Smiling as you never know who's day you'll brighten.




Some of the wonderful Ladies Only Morning Fitness Class.










Myself and Emily at The Ethelton Entertainers Peformance this year. www.facebook.com/EtheltonEntertainers













"Arthritis doesn't just effect the elderly, it effects children too..."
Me at Big Blue Night for Kids Arthritis this year.













I love bringing Bursts of Peoples lives to our listeners every Wednesday on Life Bursts with Matt.
It's one of the highlights of my busy week.

Tuesday, 10 November 2015

Arthritis in Children Sucks

I started writing a blog after many years of people wanting me to write down my feelings and share my story so others can understand what it is like to have Arthritis as a child.

As I have said in my other posts that having Arthritis Sucks! It doesn't just suck in the way that missing the bus home from work or the way when you get stuck at a traffic light you would have been able to beat if the slow driver in front has moved a little bit faster. 
Having Arthritis sucks more than you could ever imagine, what makes it worse is that I know no other way of living, breathing or being.

Through Kids Arthritis when I meet and speak with other children with Arthritis they also say it sucks, then I ask why?
One child said because I can not run around with all my friends in the playground.
Another said because I can't sit on the ground to read a book with my brother and finally the one I relate to the most is.
Missing so much school due to appointments, pain and swelling which them means tiredness and nothing being able to get done. This then leads to falling out with friends and study which then makes the Arthritis worse.

Once people realise Children get Arthritis, they then learn that it doesn't just effect your joints with pain and stiffness, but it effects your emotional state. I am no saying we get depressed, some may but in my experience you just feel useless. For example last weekend I was preparing my family getaway celebration to the beach for my birthday, but my father had to step in to finish preparing as I could not stand or walk anymore. It's times like that you feel useless because all you want to do is GET IT DONE! but you can't, because the pain just makes you stop and you can't do anymore until you rest for a bit longer.

So to all those children out there reading this. Yes Arthritis sucks, but what ever you do. 
Please don't give up. 
It may be hard now but you just wait until tomorrow because it might just be a little brighter.

Until next time,

Keep smiling because you never know who's day you'll brighten.
(Here's a Sarah Selfie from my Birthday Weekend away)

Saturday, 7 November 2015

How was your morning?

Something that I get asked a lot is What's a typical morning for a Girl with Arthritis?
Every day is different but a typical day goes like this. 

Woken up by the birds in the trees and a pain in my right hip. Sometimes I can move it other times I just lie there waiting for it to decide what it's going to do. I feel it has a mind of its own but then I remember, I control that mind.

As many of you know I am blind in my right eye but have minimal vision in my left eye that requires a daily contact lens or glasses use. I prefer the contact as my eyes are too big and my face to small to find a pair that fit just right. The contacts go in and usually by then my hip has decided to move.

The Meloxicam pills are swallowed and the adventure to get clothed begins.

I like to keep the clothes I wear the next day fresh next to my bed so that if I'm in too much pain to do anything I don't have far to walk to get clothed. The part that annoys me the most are my socks and shoes. I have my shoes laces pre tired so that I don't have to rely on anyone else to tie them but the socks are the most difficult part. If no one is around to help then I have the 'Sarah Way' of getting them on. It does take more time so sometimes I ask my dogs for help (not really, but imagine if that could really happen) 

Once the PJs are away in the drawer next to my bed and the bed is made I head to the gym for my morning unstiffening aka workout as the normal people call it. 

During this 'workout' my key exercises I complete everyday to unstiffen myself are:
10 minutes on the exercise bike 
100 Squats at 60kg on a smith machine
80 Lat pull downs at 25.5kg 
60 Jack knives with a 10kg weight
60 Chin Ups 
40 Tricep dips 
80 Leg Press at 140kg
On days when I am not so stiff I do more (which isn't often)
You may be thinking WOW THIS IS A LOT! but you have to remember that I train very hard everyday because if I have strong muscles, I'll have strong bones which leads to a healthier life, hopefully.

From here I mix myself a fruit smoothie full of bananas, peaches and strawberries with a bowl of yummy oats. 

What is your morning like? Head to my Facebook page and please let me know. www.facebook.com/sarahhammondgirlwitharthritis 

Until next week,

Just keep smiling as you never know who's day you'll brighten.


Sunday, 1 November 2015

I have hobbies too..

When I was 15 I took part in work experience at a local community radio station and at this time I had taken myself off Prednisolne and was quickly loosing weight that had been gained through this.
My passion for radio all started because of my Arthritis. At 12 years of age I was asked to have an interview on the SA Radio network ABC. From the moment I walked into the radio studio, it could see myself really liking this. Then when we were on air it just flowed so naturally and this is where the passion sparked.

If you have read my other blogs you will see time and time again that I don't look up to anyone or idolise anyone as I am my own hero, but in a radio sense. Peter Goers is the inspiration. When I am driving after 7pm only in the lighter months, you will hear his radio show bursting from my car.
I describe his shows to others as an old fashion type of program, which I love.

From my work experience it lead me to beginning a youth show on that very station and after 6 long years it was time to move on to bigger things in the industry.
Hills Radio was where just recently as a 21 year old created "Life Bursts" a show where my host and I bring a burst of peoples lives through the air waves to you.
Other radio shows interview people about their work and their job position but at Life Bursts it's all about where you came from and why you love life, which I find really interesting.

Radio is fun as a hobby as I get to meet new people and talk all I want as I produce and host the show with Matt my other host. We get along so well and couldn't ask for a better person to spend 2 hours in a room with each Wednesday afternoon. The passion flows from us both as we work as a team to do what we both love, radio.

Having Arthritis doesn't stop me from doing what I love and neither should things in life that you think are too hard stop you. Yes sometimes it's hard but just remember all those wonderful, pain free moments in your life and everything will be just fine.


Until next week,

Just keep smiling, as you never know who's day you'll brighten.