Showing posts with label love. Show all posts
Showing posts with label love. Show all posts

Monday, 1 May 2017

Flowers for Charity

We all know a person that loves their garden, they may even be you, but my mother loves her garden for a special reason.

As a child I remember each year she’d take up more and more room in our backyard to grow more flowers which for 21 years she has grown, bunched and sold on the Echunga Main Street for Juvenile Arthritis. She does this between ANZAC and Mother’s Day. During this there are many community members who come together and show their support not only for the work my mother is doing, but for the 1 in 1000 Children in Australia living with Juvenile Arthritis.

I remember one year spending part of this time in hospital for Juvenile Arthritis related surgeries, but it didn’t stop the community passion to help support Children living with Arthritis. While my mother spent time in hospital with me, the volunteers were at our home creating bunches of flowers, as they knew that I wasn’t the only one living like this and by them helping more people would learn about the condition.

Another story is about the many times throughout the years when it would rain just before Mother’s Day. Now my mother spends all year cutting, watering and pouring a whole heap of love into these flowers and when the week before Mother’s Day the rain comes and ruins her work, it’s a hard thing to watch.


I need to mention these aren’t any flowers, they’re the special Mother’s Day flower; Chrysanthemums. Their unique smell and bright colours they’re the perfect flower to give a special lady or person. If you need a reason to grab someone a gift or add some colour to your home, head through Echunga between ANZAC and Mother’s Day to show your support for the 1 in 1000 Children in Australia living with Juvenile Arthritis.

Monday, 13 February 2017

Not 'Just a Girl' Anymore.

November 26th, 2016 the last Kids Arthritis Board Meeting for 2016. 




Kids Arthritis Board Members.
Sarah Hammond, Arsene Iribuka, Marjorie Hammond, Jenny Bennett, Rhys Jarrett, Brett Freeman







At this time I'd just been nominated for Start Up Adelaide Volunteer of the Year and was waiting eagerly for the ceremony. We also took a moment to look back on how far as an organisation we'd come. Everything that we'd achieved in our first year as Australia's First and Leading organisation, Kids Arthritis. 





Start Up Adelaide Volunteer of the Year Award.
Brett Freeman, Sarah Hammond, Mathew O'Donorfrio.
                                                                                






We just held our second annual Christmas Celebration for children, their families and careers living with Juvenile Arthritis and looking forward to the afternoon as it was our Board Christmas Lunch, but volunteer afternoon tea.
                                                                                    Emily, Sarah, Arthur the Arthritis Bear, Lucy.
You could say I was pretty happy and we were all excited about what we've all achieved together to Change the way the World views Arthritis. When in fact it was just the beginning to the excitement that was coming in 2017!

Monday 23rd January, 2017. Australia Day South Australia Awards 2017.

The day I was named South Australian Young Citizen of the Year. Not just nominated, but actually won this prestigious award. 
It was a great feeling knowing that finally after 23 years of living thinking that not many cared about what I lived with and doing through Kids Arthritis, everyone finally wanted to know and help out! The phone didn't stop ringing and emails kept flowing with interviews, letters of support and most importantly. Children, their families and carers reaching out and sharing their story living with Juvenile Arthritis. 




The awards didn't stop there. Next came Mount Barker Young Citizen of the Year and Mayor's Achievement Award on Australia Day 2017!

The best part of all this?

Not only was my family there, but supporters of Kids Arthritis and children who live with Juvenile Arthritis. This is extra special because these awards are not for me. They're for the 1 in 1000 Children in Australia living with Juvenile Arthritis. Everything that I do in my life is for them. For their families and careers as well. As I don't want any child, family or carers living the way I had to growing up.

To watch the videos or see everyone's smiles at both these exciting events, please head here: www.facebook.com/kidsarthritis

Just remember that "the ones who are crazy enough to change the world, are the ones that do."

Monday, 11 July 2016

The Beginning of a Changed World.

This photo of Tahila cuddling Arthur the Arthritis Bear taken by the wonderful Kids Arthritis Media Man, Rhys. Reminds me of how that one moment that someone actually listened to me about my Juvenile Arthritis struggles, is now helping so many others just like me. 

I had to create a movie looking back at how far not only Kids Arthritis had come in the past two years, but myself. From humble beginnings getting three supporters and myself around a table to discuss a way to create awareness. To a National Launch that attached not only local Identities, but community members from all over Australia together in one place. Not to mention a whole radio show on Hills Radio devoted to the world changing evening, with interviews from children, parents and community members all sharing in the cause.

We have now been named a fastest growing non for profit in our area. Offering more programs and holding more events in our first year of official operation than most other organisation of our age. This gives me great pride, as each day I awake no matter how much pain I'm in or fatigued I may be, to change the way the world views Arthritis. 

To some this is a huge fate, but to me, it's my life and will always be my life. The children I come in contact everyday all have one thing in common besides living with Juvenile Arthritis, that is; SUPPORT. 

Kids Arthritis is Australia's First organisation solely dedicated to supporting Children living with Arthritis. I know it's hard when you've lived an isolated life where you think no one understands about your child's disease, that someone or even a organisation out there really cares this much.

Well we do! We care about how your child feels, what's going on in their lives now and in the future. Not only that but, you as parents, grandparents and friends. What it feels like for you. Kids Arthritis Australia is here to help. We have parents, friends, children and professionals who live with Juvenile Arthritis everyday for you to talk to. We're all volunteers and are in it for you not for the money. We want to help and support children, their families and carers living with Juvenile Arthritis in any way possible.

If I read this ten or fifteen years ago, I would jump on the opportunity for a healthier and better life surrounded by others just like me, living just like me. If you're reading this now and know a child living with Juvenile Arthritis, please don't be ashamed to seek support from myself at Kids Arthritis Australia as we are here for you everyday. 

Wednesday, 9 December 2015

This week Sarah is dairy intolerant.

This weeks post gets its name from Rhys from RawCutAU. This guy does so much for Kids living with Arthritis I swear he gets sick of my voice because of all the editing he does for the videos.

For the last couple of months when I have had my late morning dose of caffeine, all thanks to the reoccurring Lupus that just doesn't want to give me a break. I have felt quite sick afterwards and sometimes it wouldn't stay down, rather come back up again.

When you have Arthritis doctors sometimes can not give you an answer. You can spend hours having tests done to get back the results you knew you were going to get. After a life of wasting hours doing this, I now sometimes try to find out the matter before going to see a doctor.

On this occasion I knew that milk upset me but wasn't sure whether all dairy would have the same effect, so when my friends went out for pizza. I joined them to see how the dairy in pizza would effect me. Same reaction as the milk but this time it actually stayed inside me.
I tried different dairy and came to the conclusion that the Arthritis has changed my immune system once again and now Soy Milk is my best friend. 

As I do at Kids Arthritis we are open and share with one another what is going on in our lives. 
It was a Wednesday and it was filming day for #Pranks4KidsArthritis and Rhys was pouring coffees as he usually does. Before it came to mine I had to interrupt him and pour soy milk into mine rather than dairy milk. I explained to him the story I have just told you and this is how the title for this weeks post came about. 

Having Arthritis doesn't just effect your joints but sometimes your internal organs as well. All Arthritis medications are designed to alter the child's body to help it keep their disease under control. If you ever do experience any unusual feelings even if you don't have Arthritis, please speak with a doctor. I have had Arthritis long enough that if something isn't right, I will try and fix it within reason and then head to the doctor, because if I didn't I should live in a hospital.

So to Rhys who not only volunteers his time support Children living with Arthritis but to a dear friend who is a listening ear and a laughing companion, thank you for all that you do. You really are someone special.

Until next time,

Keep smiling as you never know who's day you'll brighten. 





Tuesday, 17 November 2015

What is Lupus?

The year was 2013 and it was my usual Rheumy, or Arthritis doctor to those who don't know the Arthritis lingo. It starts with a blood test that usually takes more than half an hour. This is because my veins are quite thin due to the thousands of times they have been broken because of infusions, operations and blood tests.
From here it's the wait to see the Rheumy and into her office I go.

Now I am referring to this particular appointment as this was when I was told I had an extra strand in my body that is known as Lupus in my case.
Up to this point I had experienced times of getting lost while out driving, feeling more tired than usual, random vomiting throughout the day and a rash all over my body that was made worse through sunlight. Now if you have any of these symptoms please do not assume that it's Lupus, please go see you local doctor.

This moment that the Rheumy informed me of yet another autoimmune disease was attacking my body, I did feel just a bit frustrated with the result but at the same time there was nothing I could do to fix it.

Now for those who don't know what Lupus is, I found an easy explanation on MedicalNewsToday.

Lupus is a chronic autoimmune disease in which the immune system produces antibodies to cells within the body leading to widespread inflammation and tissue damage.
Any part of the body can be affected by lupus as it has an array of clinical manifestations affecting the skin, joints, brain, lungs, kidneys, blood vessels and other internal organs.

When I am diagnosed with a new condition, which happens quite a lot these days. I ask as many questions as possible to the Rheumy and she refers me onto the internet for more information. Some of my favourite facts (sarcasm) about Lupus that I found online are:

Lupus is an autoimmune disease that can be mild or life threatening.
- More than 90% of Lupus suffers are Women.
Staying out of the sun is perhaps the most important thing to do.

What does make me furious is that my Lupus may have been prevented as it's believed to be medical induced. Which means the medication I may have once taken or take now have caused Lupus. 

Even though it's another disease I now have to live with everyday, I do have a life and this life may be short for me, but I am determined to live everyday to the full and to live it supporting other children like me with Arthritis.

Until next time.

Keep smiling as you never know who's day you'll brighten.


Thursday, 12 November 2015

Thanks for an Amazing 21st year!

I don't know about anyone else but on my birthday I not only enjoy celebrating the past year of my life, but thinking about all that I have achieved.

This year I was 21 years old and looking back, Wow I have achieved some pretty amazing things for someone of my age with my type of disability. 

Not only have I started an organisation that is dedicated to supporting Children living with Arthritis. 

I have also been successful in not needing an infusion every 4 weeks and a tablet every morning to stay alive, rather just the little yellow tablet.

Come into contact with some amazing KAWarriors who suffer with Arthritis everyday and who have been supported by Kids Arthritis (Yes you, Emily and Kristy!)

Organised and hosted my very own event, Big Blue Night in support of Kids Arthritis.

Began Life Bursts, a radio show every Wednesday from 4pm to 6pm on Hills Radio, with my wonderful other host Matt and had fun learning everything radio again from Crash!

Created hundreds upon hundreds on Facebook, Twitter and Instagram posts all in support of Kids Arthritis.

Raised over $3,000 in support of Children with Arthritis.

Taken way too many selfies on my SnapChat, some even ended up on instagram; www.instagram.com/kidsarthritis

Thought Bitstrips were cool and annoyed all my friends with them.

Consumed too many cups of lemon tea while eating fresh fruit with oats, I say fruit with oats as there's always more fruits than oats.

Celebrated birthdays and deaths of love ones this year (this includes my pet chickens and ducks).

Had fun #Pranking4KidsArthritis with Rhys from RawCut and spending too much time infront of the camera telling lame jokes. www.youtube.com/pranks4kidsarthritis

Helped so many amazing people achieve their health and fitness goals through my Health and lifestyle group and personal training not only in my home town but Adelaide too!

www.facebook.com/sarahfitnessechunga


and the most important one.

Learnt that others do really care about my story, my pains and how I want to support Children with Arthritis. Before this year it was so hard but I thank everyone who has been apart of my life this year because you have helped shape me and made me believe that I really can change the world through supporting other children just like me with Arthritis.

Until next time.

Keep Smiling as you never know who's day you'll brighten.




Some of the wonderful Ladies Only Morning Fitness Class.










Myself and Emily at The Ethelton Entertainers Peformance this year. www.facebook.com/EtheltonEntertainers













"Arthritis doesn't just effect the elderly, it effects children too..."
Me at Big Blue Night for Kids Arthritis this year.













I love bringing Bursts of Peoples lives to our listeners every Wednesday on Life Bursts with Matt.
It's one of the highlights of my busy week.

Tuesday, 10 November 2015

Arthritis in Children Sucks

I started writing a blog after many years of people wanting me to write down my feelings and share my story so others can understand what it is like to have Arthritis as a child.

As I have said in my other posts that having Arthritis Sucks! It doesn't just suck in the way that missing the bus home from work or the way when you get stuck at a traffic light you would have been able to beat if the slow driver in front has moved a little bit faster. 
Having Arthritis sucks more than you could ever imagine, what makes it worse is that I know no other way of living, breathing or being.

Through Kids Arthritis when I meet and speak with other children with Arthritis they also say it sucks, then I ask why?
One child said because I can not run around with all my friends in the playground.
Another said because I can't sit on the ground to read a book with my brother and finally the one I relate to the most is.
Missing so much school due to appointments, pain and swelling which them means tiredness and nothing being able to get done. This then leads to falling out with friends and study which then makes the Arthritis worse.

Once people realise Children get Arthritis, they then learn that it doesn't just effect your joints with pain and stiffness, but it effects your emotional state. I am no saying we get depressed, some may but in my experience you just feel useless. For example last weekend I was preparing my family getaway celebration to the beach for my birthday, but my father had to step in to finish preparing as I could not stand or walk anymore. It's times like that you feel useless because all you want to do is GET IT DONE! but you can't, because the pain just makes you stop and you can't do anymore until you rest for a bit longer.

So to all those children out there reading this. Yes Arthritis sucks, but what ever you do. 
Please don't give up. 
It may be hard now but you just wait until tomorrow because it might just be a little brighter.

Until next time,

Keep smiling because you never know who's day you'll brighten.
(Here's a Sarah Selfie from my Birthday Weekend away)

Wednesday, 4 November 2015

What is Family?

I come from a small country town where everyone knows everybody and on the eve of my 22nd birthday I thought I'd tell you a bit more about my family.

When you internet search 'Family' the following appears from Wiki:
"In the context of human society, a family (from Latinfamilia) is a group of people affiliated by consanguinity (by recognized birth), affinity (by marriage), or co-residence (as implied by the etymology of the English word "family"[1]) and/or shared consumption (see nurture kinship). Members of the immediate family includes spouses, parents, brothers, sisters, sons and/or daughters."

Family to me is everyone I am close to, the people who you can just pop over and have a cuppa with at any time. The people you have over for lunch and dinner. Those people that sometimes you don't mind if they're still over when the party has finished.

With my 22nd birthday coming up next week I have invited my family to help celebrate with me in a way that we do best. Over a lovely meal cooked that will be cooked with love by my father.
My father makes the best Weekend pancakes in whatever shape you want and chocolate moose with sprinkles. 
My mother who is always looking out for me with my Arthritis and there to take me to any appointments that I need. My younger brother who helps me with any computer or programming problems and I know is up for a game of COD at any time. (Call of Duty for those who don't know). 
My Great Auntie who is sisters to my now deceased Grandmother, and creates the most delicious pavlova. My Uncle who loves working on the farm but always has time to recreate my grandmothers famous slow cooked rice pudding that we all love! 
My other Uncle who when he isn't out fishing brings us his freshest fish. My Auntie who always giving me the latest copy of her English magazines so I can catch up with all the latest English gossip. 

Finally my boyfriend, who I never thought I'd ever find. Who understands what pain and suffering I deal with everyday and still helps me smile. His wonderful mother and brother who accepted me into their family. 
There's more to my family like our next door neighbours who we spend Sunday Night Family dinners with and so many more in my little country town. 

Family to everyone is something different, full of different people of different ages but we all have something in common. That is that we all care for one another.

Until next week,

Just keep smiling as you never know who's day you'll brighten.