Showing posts with label about. Show all posts
Showing posts with label about. Show all posts

Monday, 1 May 2017

Flowers for Charity

We all know a person that loves their garden, they may even be you, but my mother loves her garden for a special reason.

As a child I remember each year she’d take up more and more room in our backyard to grow more flowers which for 21 years she has grown, bunched and sold on the Echunga Main Street for Juvenile Arthritis. She does this between ANZAC and Mother’s Day. During this there are many community members who come together and show their support not only for the work my mother is doing, but for the 1 in 1000 Children in Australia living with Juvenile Arthritis.

I remember one year spending part of this time in hospital for Juvenile Arthritis related surgeries, but it didn’t stop the community passion to help support Children living with Arthritis. While my mother spent time in hospital with me, the volunteers were at our home creating bunches of flowers, as they knew that I wasn’t the only one living like this and by them helping more people would learn about the condition.

Another story is about the many times throughout the years when it would rain just before Mother’s Day. Now my mother spends all year cutting, watering and pouring a whole heap of love into these flowers and when the week before Mother’s Day the rain comes and ruins her work, it’s a hard thing to watch.


I need to mention these aren’t any flowers, they’re the special Mother’s Day flower; Chrysanthemums. Their unique smell and bright colours they’re the perfect flower to give a special lady or person. If you need a reason to grab someone a gift or add some colour to your home, head through Echunga between ANZAC and Mother’s Day to show your support for the 1 in 1000 Children in Australia living with Juvenile Arthritis.

Wednesday, 9 December 2015

This week Sarah is dairy intolerant.

This weeks post gets its name from Rhys from RawCutAU. This guy does so much for Kids living with Arthritis I swear he gets sick of my voice because of all the editing he does for the videos.

For the last couple of months when I have had my late morning dose of caffeine, all thanks to the reoccurring Lupus that just doesn't want to give me a break. I have felt quite sick afterwards and sometimes it wouldn't stay down, rather come back up again.

When you have Arthritis doctors sometimes can not give you an answer. You can spend hours having tests done to get back the results you knew you were going to get. After a life of wasting hours doing this, I now sometimes try to find out the matter before going to see a doctor.

On this occasion I knew that milk upset me but wasn't sure whether all dairy would have the same effect, so when my friends went out for pizza. I joined them to see how the dairy in pizza would effect me. Same reaction as the milk but this time it actually stayed inside me.
I tried different dairy and came to the conclusion that the Arthritis has changed my immune system once again and now Soy Milk is my best friend. 

As I do at Kids Arthritis we are open and share with one another what is going on in our lives. 
It was a Wednesday and it was filming day for #Pranks4KidsArthritis and Rhys was pouring coffees as he usually does. Before it came to mine I had to interrupt him and pour soy milk into mine rather than dairy milk. I explained to him the story I have just told you and this is how the title for this weeks post came about. 

Having Arthritis doesn't just effect your joints but sometimes your internal organs as well. All Arthritis medications are designed to alter the child's body to help it keep their disease under control. If you ever do experience any unusual feelings even if you don't have Arthritis, please speak with a doctor. I have had Arthritis long enough that if something isn't right, I will try and fix it within reason and then head to the doctor, because if I didn't I should live in a hospital.

So to Rhys who not only volunteers his time support Children living with Arthritis but to a dear friend who is a listening ear and a laughing companion, thank you for all that you do. You really are someone special.

Until next time,

Keep smiling as you never know who's day you'll brighten. 





Tuesday, 10 November 2015

Arthritis in Children Sucks

I started writing a blog after many years of people wanting me to write down my feelings and share my story so others can understand what it is like to have Arthritis as a child.

As I have said in my other posts that having Arthritis Sucks! It doesn't just suck in the way that missing the bus home from work or the way when you get stuck at a traffic light you would have been able to beat if the slow driver in front has moved a little bit faster. 
Having Arthritis sucks more than you could ever imagine, what makes it worse is that I know no other way of living, breathing or being.

Through Kids Arthritis when I meet and speak with other children with Arthritis they also say it sucks, then I ask why?
One child said because I can not run around with all my friends in the playground.
Another said because I can't sit on the ground to read a book with my brother and finally the one I relate to the most is.
Missing so much school due to appointments, pain and swelling which them means tiredness and nothing being able to get done. This then leads to falling out with friends and study which then makes the Arthritis worse.

Once people realise Children get Arthritis, they then learn that it doesn't just effect your joints with pain and stiffness, but it effects your emotional state. I am no saying we get depressed, some may but in my experience you just feel useless. For example last weekend I was preparing my family getaway celebration to the beach for my birthday, but my father had to step in to finish preparing as I could not stand or walk anymore. It's times like that you feel useless because all you want to do is GET IT DONE! but you can't, because the pain just makes you stop and you can't do anymore until you rest for a bit longer.

So to all those children out there reading this. Yes Arthritis sucks, but what ever you do. 
Please don't give up. 
It may be hard now but you just wait until tomorrow because it might just be a little brighter.

Until next time,

Keep smiling because you never know who's day you'll brighten.
(Here's a Sarah Selfie from my Birthday Weekend away)

Wednesday, 4 November 2015

What is Family?

I come from a small country town where everyone knows everybody and on the eve of my 22nd birthday I thought I'd tell you a bit more about my family.

When you internet search 'Family' the following appears from Wiki:
"In the context of human society, a family (from Latin: familia) is a group of people affiliated by consanguinity (by recognized birth), affinity (by marriage), or co-residence (as implied by the etymology of the English word "family"[1]) and/or shared consumption (see nurture kinship). Members of the immediate family includes spouses, parents, brothers, sisters, sons and/or daughters."

Family to me is everyone I am close to, the people who you can just pop over and have a cuppa with at any time. The people you have over for lunch and dinner. Those people that sometimes you don't mind if they're still over when the party has finished.

With my 22nd birthday coming up next week I have invited my family to help celebrate with me in a way that we do best. Over a lovely meal cooked that will be cooked with love by my father.
My father makes the best Weekend pancakes in whatever shape you want and chocolate moose with sprinkles. 
My mother who is always looking out for me with my Arthritis and there to take me to any appointments that I need. My younger brother who helps me with any computer or programming problems and I know is up for a game of COD at any time. (Call of Duty for those who don't know). 
My Great Auntie who is sisters to my now deceased Grandmother, and creates the most delicious pavlova. My Uncle who loves working on the farm but always has time to recreate my grandmothers famous slow cooked rice pudding that we all love! 
My other Uncle who when he isn't out fishing brings us his freshest fish. My Auntie who always giving me the latest copy of her English magazines so I can catch up with all the latest English gossip. 

Finally my boyfriend, who I never thought I'd ever find. Who understands what pain and suffering I deal with everyday and still helps me smile. His wonderful mother and brother who accepted me into their family. 
There's more to my family like our next door neighbours who we spend Sunday Night Family dinners with and so many more in my little country town. 

Family to everyone is something different, full of different people of different ages but we all have something in common. That is that we all care for one another.

Until next week,

Just keep smiling as you never know who's day you'll brighten.