Showing posts with label birthday. Show all posts
Showing posts with label birthday. Show all posts

Monday, 7 November 2016

Arthritis and Time Travel

Let's go back in time. 12 months ago to be exact and take a look at what life was like at the end of my 21st year living with Juvenile Arthritis. 

Thanks for an Amazing 21st year!

I don't know about anyone else but on my birthday I not only enjoy celebrating the past year of my life, but thinking about all that I have achieved.


This year I was 21 years old and looking back, Wow I have achieved some pretty amazing things for someone of my age with my type of disability. 

Not only have I started an organisation that is dedicated to supporting Children living with Arthritis. 

I have also been successful in not needing an infusion every 4 weeks and a tablet every morning to stay alive, rather just the little yellow tablet.

Come into contact with some amazing KAWarriors who suffer with Arthritis everyday and who have been supported by Kids Arthritis (Yes you, Emily and Kristy!)

Organised and hosted my very own event, Big Blue Night in support of Kids Arthritis.

Began Life Bursts, a radio show every Wednesday from 4pm to 6pm on Hills Radio, with my wonderful other host Matt and had fun learning everything radio again from Crash!

Created hundreds upon hundreds on Facebook, Twitter and Instagram posts all in support of Kids Arthritis.

Raised over $3,000 in support of Children with Arthritis.

Taken way too many selfies on my SnapChat, some even ended up on instagram; www.instagram.com/kidsarthritis

Thought Bitstrips were cool and annoyed all my friends with them.

Consumed too many cups of lemon tea while eating fresh fruit with oats, I say fruit with oats as there's always more fruits than oats.

Celebrated birthdays and deaths of love ones this year (this includes my pet chickens and ducks).

Had fun #Pranking4KidsArthritis with Rhys from RawCut and spending too much time infront of the camera telling lame jokes. www.youtube.com/pranks4kidsarthritis

Helped so many amazing people achieve their health and fitness goals through my Health and lifestyle group and personal training not only in my home town but Adelaide too!

www.facebook.com/sarahfitnessechunga


and the most important one.

Learnt that others do really care about my story, my pains and how I want to support Children with Arthritis. Before this year it was so hard but I thank everyone who has been apart of my life this year because you have helped shape me and made me believe that I really can change the world through supporting other children just like me with Arthritis.

Until next time.

Keep Smiling as you never know who's day you'll brighten.





Some of the wonderful Ladies Only Morning Fitness Class.








Myself and Emily at The Ethelton Entertainers Peformance this year. www.facebook.com/EtheltonEntertainers














"Arthritis doesn't just effect the elderly, it effects children too..."
Me at Big Blue Night for Kids Arthritis this year.














I love bringing Bursts of Peoples lives to our listeners every Wednesday on Life Bursts with Matt.
It's one of the highlights of my busy week.

Thursday, 12 November 2015

Thanks for an Amazing 21st year!

I don't know about anyone else but on my birthday I not only enjoy celebrating the past year of my life, but thinking about all that I have achieved.

This year I was 21 years old and looking back, Wow I have achieved some pretty amazing things for someone of my age with my type of disability. 

Not only have I started an organisation that is dedicated to supporting Children living with Arthritis. 

I have also been successful in not needing an infusion every 4 weeks and a tablet every morning to stay alive, rather just the little yellow tablet.

Come into contact with some amazing KAWarriors who suffer with Arthritis everyday and who have been supported by Kids Arthritis (Yes you, Emily and Kristy!)

Organised and hosted my very own event, Big Blue Night in support of Kids Arthritis.

Began Life Bursts, a radio show every Wednesday from 4pm to 6pm on Hills Radio, with my wonderful other host Matt and had fun learning everything radio again from Crash!

Created hundreds upon hundreds on Facebook, Twitter and Instagram posts all in support of Kids Arthritis.

Raised over $3,000 in support of Children with Arthritis.

Taken way too many selfies on my SnapChat, some even ended up on instagram; www.instagram.com/kidsarthritis

Thought Bitstrips were cool and annoyed all my friends with them.

Consumed too many cups of lemon tea while eating fresh fruit with oats, I say fruit with oats as there's always more fruits than oats.

Celebrated birthdays and deaths of love ones this year (this includes my pet chickens and ducks).

Had fun #Pranking4KidsArthritis with Rhys from RawCut and spending too much time infront of the camera telling lame jokes. www.youtube.com/pranks4kidsarthritis

Helped so many amazing people achieve their health and fitness goals through my Health and lifestyle group and personal training not only in my home town but Adelaide too!

www.facebook.com/sarahfitnessechunga


and the most important one.

Learnt that others do really care about my story, my pains and how I want to support Children with Arthritis. Before this year it was so hard but I thank everyone who has been apart of my life this year because you have helped shape me and made me believe that I really can change the world through supporting other children just like me with Arthritis.

Until next time.

Keep Smiling as you never know who's day you'll brighten.




Some of the wonderful Ladies Only Morning Fitness Class.










Myself and Emily at The Ethelton Entertainers Peformance this year. www.facebook.com/EtheltonEntertainers













"Arthritis doesn't just effect the elderly, it effects children too..."
Me at Big Blue Night for Kids Arthritis this year.













I love bringing Bursts of Peoples lives to our listeners every Wednesday on Life Bursts with Matt.
It's one of the highlights of my busy week.

Tuesday, 10 November 2015

Arthritis in Children Sucks

I started writing a blog after many years of people wanting me to write down my feelings and share my story so others can understand what it is like to have Arthritis as a child.

As I have said in my other posts that having Arthritis Sucks! It doesn't just suck in the way that missing the bus home from work or the way when you get stuck at a traffic light you would have been able to beat if the slow driver in front has moved a little bit faster. 
Having Arthritis sucks more than you could ever imagine, what makes it worse is that I know no other way of living, breathing or being.

Through Kids Arthritis when I meet and speak with other children with Arthritis they also say it sucks, then I ask why?
One child said because I can not run around with all my friends in the playground.
Another said because I can't sit on the ground to read a book with my brother and finally the one I relate to the most is.
Missing so much school due to appointments, pain and swelling which them means tiredness and nothing being able to get done. This then leads to falling out with friends and study which then makes the Arthritis worse.

Once people realise Children get Arthritis, they then learn that it doesn't just effect your joints with pain and stiffness, but it effects your emotional state. I am no saying we get depressed, some may but in my experience you just feel useless. For example last weekend I was preparing my family getaway celebration to the beach for my birthday, but my father had to step in to finish preparing as I could not stand or walk anymore. It's times like that you feel useless because all you want to do is GET IT DONE! but you can't, because the pain just makes you stop and you can't do anymore until you rest for a bit longer.

So to all those children out there reading this. Yes Arthritis sucks, but what ever you do. 
Please don't give up. 
It may be hard now but you just wait until tomorrow because it might just be a little brighter.

Until next time,

Keep smiling because you never know who's day you'll brighten.
(Here's a Sarah Selfie from my Birthday Weekend away)

Wednesday, 4 November 2015

What is Family?

I come from a small country town where everyone knows everybody and on the eve of my 22nd birthday I thought I'd tell you a bit more about my family.

When you internet search 'Family' the following appears from Wiki:
"In the context of human society, a family (from Latinfamilia) is a group of people affiliated by consanguinity (by recognized birth), affinity (by marriage), or co-residence (as implied by the etymology of the English word "family"[1]) and/or shared consumption (see nurture kinship). Members of the immediate family includes spouses, parents, brothers, sisters, sons and/or daughters."

Family to me is everyone I am close to, the people who you can just pop over and have a cuppa with at any time. The people you have over for lunch and dinner. Those people that sometimes you don't mind if they're still over when the party has finished.

With my 22nd birthday coming up next week I have invited my family to help celebrate with me in a way that we do best. Over a lovely meal cooked that will be cooked with love by my father.
My father makes the best Weekend pancakes in whatever shape you want and chocolate moose with sprinkles. 
My mother who is always looking out for me with my Arthritis and there to take me to any appointments that I need. My younger brother who helps me with any computer or programming problems and I know is up for a game of COD at any time. (Call of Duty for those who don't know). 
My Great Auntie who is sisters to my now deceased Grandmother, and creates the most delicious pavlova. My Uncle who loves working on the farm but always has time to recreate my grandmothers famous slow cooked rice pudding that we all love! 
My other Uncle who when he isn't out fishing brings us his freshest fish. My Auntie who always giving me the latest copy of her English magazines so I can catch up with all the latest English gossip. 

Finally my boyfriend, who I never thought I'd ever find. Who understands what pain and suffering I deal with everyday and still helps me smile. His wonderful mother and brother who accepted me into their family. 
There's more to my family like our next door neighbours who we spend Sunday Night Family dinners with and so many more in my little country town. 

Family to everyone is something different, full of different people of different ages but we all have something in common. That is that we all care for one another.

Until next week,

Just keep smiling as you never know who's day you'll brighten.